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July 2009
Special
Edition |
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In This Issue
Science Advisory Board
Roberto Jorge Fernandez
Viña, MD Honorary Professor University Maimonides Argentina Honorary Professor University of Beijing, China Shimon Slavin, MD Professor of Medicine Medical & Scientific
Director Carlos Lima, MD Zannos G. Grekos, MD Kitipan V. Arom, MD,
PhD, FACS, FACC, FACCP, FRCST Don Margolis www.repairstemcells.com |
The China ExperienceThis
is the July "China Special" newsletter. We celebrate the
happy return home of the first two RSCI youngsters under our new program of
helping people through the maze of applying to distant stem cell centers and
getting approvals and handling so many details (passports, visas, medical
info, airline tickets, wiring funds, and who knows what else). First was Michelle Gip, age 16, of Fresno, California.
She suffers from a rare eye dysfunction for which virtually nothing
works in Western Medicine. She left China with her "central field"
a bit larger and hopes for continued improvement back home. Her blog
link is at the bottom, with uncommon writing ability in current USA teenage
lingo. See her adventure through her eyes! Nate Redman, a 17-year-old from Nebraska,
suffering from an even rarer neurological disease, has an article link in
this Newsletter from China. That's his picture with his mom at the top of
this page. And Nate's blog - a complete description of
a month in China - not to be missed by anyone considering doing the same: http://stemcellschina.com/blog/NateRedman/ It is not easy and a lot of people have trouble
making it through without our help. When the Redman family learned
after months of diagnosis problems how serious their son's illness was,
Nate’s father took charge and barraged Don Margolis with questions. Don
insisted the only place that could possible treat his relatively rare
condition was China, and the die was cast. Nate and Michelle made it through with a ton
of hard work by loving parents. Both links are below. But YOU should
look at ALL the links for proof that your home doctors, helpless when
confronted with many of the diseases treated in China, especially the two
which RSCI's first two kids have, are full of beans when they call it
"placebo effect." Following Patients in ChinaOn-going
updates from current patients at ChinaStemCells One part
travelogue, one part medical adventure and one part search for healing - patients
are chronicling their stories and sharing like never before. These are a few
of the blogs we've been following recently. A
young blind man recently noted in his blog
that he could see a candy wrapper on the floor--shapes and colors are
becoming more well-defined to him. In another, a mother caught her blind son
sitting three feet back from the TV instead of a foot away--not a big deal
for the sighted. |
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Western
doctors may tell their
patients
to avoid adult stem cell therapies in China because they don't understand
"why it should work or why it should not work" and that "no
treatment exists" for these conditions in the West. Adult stem cells are
not the final cure. But then there's that wrapper on the floor and someone's
finding something they couldn't see before. Bradley Davis and Mother Spina Bifida, Qingdao China Photo of the Month by Linde
Underwood With
this July issue we've got lots of new video content to share with you,
notices of coming Stem Cell Awareness events, a selection of new Patient
Experiences and links to media reports about patients coming to China. Carlie and Rachel Smith Kyle
Knopes, SMA2 Lawrence E
Brown III, ONH Carlie
Smith, SOD Michell
Gip, LHON Stem Cell Event in Manchester
Lots
of families showed up to the Denver Awareness in the Park event. You can
check out photos here. Over 200 people met to hear from doctors and past
patients about their experience. Thank you to everyone who turned out. The
next event will be held in Manchester, UK on 9 August. If you'd like more
information about the Manchester even check out this link or send an email over to Darren
Clarke. |
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Contact USA Direct Line: |
Don Margolis, Chairman |
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www.repairstemcells.com |
www.donrmargolis.com |
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LEGAL DISCLAIMER This Newsletter is for
educational purposes only and not to be taken as medical advice. |
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